Néis’s club feet were diagnosed by ultrasound during the second trimester of Marion’s pregnancy and the diagnosis was confirmed when Néis was 4 days old. Club Foot or clubfoot is a term for the medical condition congenital talipes equinovarus (CTEV), it is a deformity that causes the feet to turn inwards and can involve one foot or both. Around 1 in 1,000 babies will have the condition making it one of the more common congenital birth defects.
Around the world treatment protocols for the condition are well established and revolve around what is termed the Ponseti method. In France, Néis’s treatment combined French functional and Ponseti methods. In this protocol, physiotherapy sessions are combined with casting. Néis had her bilateral tenotomy when she was 3 months old and continued to wear her resin casts. Unfortunately, there was no improvement in her condition and when Néis was 9 months old Marion was told that Néis would require another operation.
Marion began searching the web for a solution and eventually found an article about Jerald Cunningham. Marion says: “My dream was to find a brace that would stretch and rehabilitate the feet, almost like having a physiotherapist for 24 hours a day! So I wrote to Jerald and he referred me to Sam and LOC.
When we first met Sam (in 2020) he was really concerned about the state of Néis’s feet, the tenotomy had not worked, dorsiflexion was non-existent, and her feet were very stiff. He was so worried, given Néis’s age, that he called Jerald for his opinion, Jerald was confident that his brace would help. And it has! The Cunningham brace is dynamic, it imitates physio stretches, it’s just so logical, club foot is a muscular problem and muscles are not meant to be immobile, so it makes sense to have a dynamic brace rather than a static one. Nobody knows about this brace in France, we are the first family to have it.
“Néis now only has to wear the brace at night, her feet are so much better, she feels comfortable in her shoes,and she even dances the capoeira! And our French consultant has confirmed that she no longer needs surgery. Throughout Néis’s treatment, Sam has been so professional but also so warm and friendly. We manage a face-to-face consultation once a year and the rest of the time we have virtual appointments and share videos and photos of Néis so Sam can give us appropriate advice.”
If your baby has been diagnosed with Club Foot and you would like to discuss what LOC can do for you please contact us for an informed discussion.