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Surgical treatment for craniosynostosis

When a baby has craniosynostosis, management is led by a specialist medical team and often involves surgery to reshape the skull.

Traditionally, this involved open surgery, but Great Ormond Street Hospital (GOSH) also offers endoscopic strip craniectomy, a less invasive procedure in which the fused sutures are released using small incisions.

Helmet therapy after craniosynostosis surgery

After surgery, some babies are referred for a specialist helmet to support head shape management as the skull continues to grow. This custom-made orthosis is designed to guide growth by holding the more prominent areas while allowing room in flatter areas.

This helmet is used after surgery to support head shape management and is similar to the helmets we provide for positional plagiocephaly, but with additional design features for babies following craniosynostosis surgery.

The 3D printed cranial remoulding helmet for babies with craniosynostosis

The LOC Cranioband Lite

Our most advanced 3D-printed cranial remoulding helmet for therapy after craniosynostosis surgery
  • Better ventilation

    Improved ventilation means babies are less likely to become hot and uncomfortable while wearing it. This helps ensure they stay comfortable and tolerate wearing their helmet well, even during warmer nights and summer months.

  • Comfortable, lightweight design

    We listened to parent’s needs for a cooler and more lightweight design. The LOC Cranioband Lite weighs approximately 40% less than traditional craniobands making it more comfortable to wear.

  • Custom 3D fit

    Each helmet is tailored from a precise 3D scan for an accurate and comfortable fit. Thinner foam walls allow for a sleeker design and improved comfort.

  • Measured outcomes

    Babies who complete their helmet programme with us often show measurable improvement in head shape, including cranial index and asymmetry.

  • Expert care and support

    To support your baby throughout the process, your dedicated orthotist will provide regular follow-up appointments and ongoing support when needed.

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Results: before & after

Patient stories

View all patient stories
  • "It wasn’t until we brought our twins to LOC that concerns about craniosynostosis were raised and we were able to access the specialist care they needed. We are forever grateful to Saeed for his support and expertise"
    View patient story
  • “I would like to say a big thank you to Jo Drake (LOC’s Head of Plagiocephaly and Craniosynostosis) who was the orthotist we saw throughout Jacob’s helmet treatment. She was amazing, obviously a perfectionist in her approach to everything... the helmets had to fit perfectly."
    View patient story
  • ”I did a bit of a Google search, came up with LOC, contacted Jo Drake (LOC’s Head of Plagiocephaly and Craniosynostosis) and felt quite confident after speaking with her. Also, when we went to see GOSH, they gave us a list of companies and obviously LOC was on that list.”
    View patient story

The helmet therapy treatment process

Before surgery

Once you and your specialist team decide that endoscopic surgery is the right choice, a pre-surgery appointment will be arranged. This can be either in clinic or virtually. During this appointment, we’ll talk to you about the helmet therapy and take a scan if needed. This scan helps us understand your baby’s head shape before surgery.

After surgery

Once your baby has recovered for about a week after surgery, we’ll take another 3D scan so we can design and model their custom LOC Cranioband Lite. This appointment takes around 90 minutes and also helps us monitor your baby’s head shape over time.

We will then 3D print their bespoke helmet in our in-house workshop.

Starting helmet treatment

Just one week after the scan, we’ll fit your baby’s LOC Cranioband Lite helmet. This appointment lasts 60 to 90 minutes, during which we’ll make any adjustments to ensure the helmet fits well.

We will also show you how to care for the helmet, as well as how to put it on and take it off.

You will gradually build up the time that the helmet is worn over a 5-day period, allowing your baby to gradually acclimatise and settle into wearing it. After this, they will continue with full-time wear of 22–23 hours per day.

You will have regular follow-up appointments to check on your baby’s progress and make adjustments to the helmet. These will happen every week at first, and then every two weeks, progressing to monthly as your baby grows.

As helmet treatment progresses

If your baby’s head shape still needs more management as they grow, they may need a second or third Cranioband Lite, depending on their age and needs.

After the LOC Cranioband Lite, your baby may move to a different helmet called the LOCband Lite, which is more durable and adjustable as they grow. This helmet can last 4 to 8 months, depending on your baby’s age and needs.

Referral partner

We’re proud to receive referrals from Great Ormond Street Hospital for Children NHS Foundation Trust.

Get in touch for a free online orthotic consultation

We’re happy to answer any questions you might have, with no commitment to proceed with treatment.

 

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