Definition and Symptoms
Cerebral Palsy (CP) is the term used to describe a group of conditions that affect the movement of muscles and the posture of the body. The term comes from the area of the brain affected, 'cerebral' refers to the brain (cerebrum) and 'palsy' is the disorder of movement or posture. It is estimated that one in 400 babies born in the UK have a type of cerebral palsy.
Cerebral palsy is an umbrella term to includes a whole range of severities and is individual in each child. Symptoms can include difficulties with walking, talking, eating or playing. More specifically:
- Muscle tightness, or spasm, or floppy muscles
- Involuntary movement of muscles
- Difficulties with walking and mobility
- Abnormal sensations
- Impairment of sight, hearing or speech
It is caused by abnormal development of, or damage to, the motor control centres of the brain. CP is caused by events before, during, or after birth. The area of the brain affected will dictate which muscles the brain cannot control or move and how severely these muscles are affected. It is non progressive, but is a lifelong condition.
Risk factors will depend on the muscles and areas of the brain affected. Obviously, problems such as seizures or the muscles affecting breathing need to be quickly treated with medication and intervention to control them. Other risks can include delay in development, where a child may not hit age-appropriate goals, such as rolling, sitting and standing. At LOC, our multidisciplinary team monitors a child’s development to give appropriate help as needed. With children who are unable to sit and stand, it is important to monitor and control the posture of their limbs, joints and spine to prevent contractures, muscle tightening, or joint instability occurring.
With children who are starting to mobilise, they may be prone to falling over if muscles are weaker and/or tighter. If tight muscles are a part of a child’s cerebral palsy, they can be at risk of muscles tightening up, particularly during growth spurts.
Complications will depend on the severity of CP, but can include breathing, swallowing and eating difficulties, and, in some cases, learning difficulties.
Other complications can include muscle and joint instability, muscle contractures (tightening), spinal problems, such as postural or structural scoliosis (a twist and rotation of the spine and/or muscles), and delay in development when compared to other children of the same age. As a child grows and mobilises, it is important to keep their muscles and joints aligned as near to 'normal' alignment as possible, to allow a stretch on the muscles, but also to protect the structure of the joint and muscles, i.e. to prevent the foot, ankle, knee, hip or spine from growing in an 'abnormal' position.
One of our Cerebral Palsy patients in her ankle foot orthoses (AFOs)
Delays in reaching age-appropriate milestone developments in infants and children are usually the first symptoms of CP. Babies with more severe cases of CP are usually diagnosed earlier than others. Other signs will include favouring one hand over the other after 12-18 months of age.
No one test is diagnostic for CP, but certain factors increase likelihood of CP. The Apgar score measures a baby's condition immediately after birth. Babies that have low Apgar scores are at increased risk for CP. Imaging of the brain using ultrasound, x rays, MRI, and/or CT scans may reveal a structural abnormality in the brain.
Depending on the area of the body and the severity of the CP, there are a large number of orthotic treatments that can help:
- helmets to protect the head against falls following a seizure;
- spinal jackets or spinal braces, which are used to maintain the alignment of the spine;
- Lycra suits are dynamic orthoses that increase proprioception and allow natural muscle movement, but guide weaker or abnormal movement with specifically placed panels that place pressure and direction on specific muscles. These garments can be gloves, socks or suits;
- lower limb orthoses include AFOs (ankle foot orthoses) and SMOs (supramalleolar - or ankle - foot orthoses), which aim to control the foot, ankle, knee and hip positions of a child through their walking cycle.
- anti-contracture orthoses can be used to stretch out tight muscles at night such as KAFOs (knee ankle foot orthoses), gaitors (for arms or legs) and night AFOs;
- FES (functional electrical stimulation) can be used to stimulate weaker or affected muscles to function in a more normal pattern. We can integrate these systems into orthotics such as AFOs or even Lycra suits.
Pink butterfly ankle foot orthoses (AFOs)
SMOs (supramalleolar - or ankle - foot orthoses) aim to control the foot, ankle, knee and hip position
Given the range of symptoms, and the matching range of possible orthotic treatments, it is essential that your clinician has the experience and clinical expertise to prescribe the correct treatment, and to fine tune any orthotic fitted, so as to provide correction and protection to your child's bones, joints and muscles.
In recognition of this we have set up a specialist clinic within LOC called OSKAR. This stands for The Optimal Kinematic Approach to Rehabilitation and is an orthotic method of treating children with lower limb neuromuscular conditions. It was originally developed by Elaine Owen MBE MSc SRP MCSP, a world renowned physiotherapist.
In the OSKAR clinic we dedicate even more time to the initial consultation and utilise our video vector Gait Lab facility. This gives us highly accurate information about the forces that are exerted on a body during the gait cycle. It allows us to prescribe and fit more accurate and objectively-measured orthotics.
We also have strong links with specialist neuro clinicians: Farshideh Bondarenko at Birkdale, Helen Miles at Milestones, and paediatric physiotherapist Kiki von Eisenhart Goodwin at Kiki's Clinic. We also work with case managers, such as NeuroHealth.
Having a multidisciplinary team approach is the best way to ensure the best possible outcome of treatment. If you want to bring along your therapist to our clinic please feel free. If that proves not to be possible, we will happily discuss your treatment with them.
There are a number of charities offering information, help and support to CP sufferers. These are perhaps the best known: