Plagiocephaly Links

There are an increasing number of online support groups and information web sites. Most of the discussion groups where parents can chat on line about Plagiocephaly, Brachycephaly and Scaphocephaly are moderated groups, offering peer support.

They are not run or organised by qualified professionals but provide a very good source of information and offer excellent links to further resources such as published research papers and web sites.

You may have to register with most of the discussion groups in order to post questions or on occasion view messages.

http://www.headstart4babies.co.uk/
If parents have difficulties with the funding of treatment, Headstart4babies a UK based charity (registered number 1112256) may be able offer parents financial assistance.

Headstart4babies is run by Philip Saich and Karen Laker, whose baby Ben was successfully treated with the use of a Cranial Orthosis (Helmet) for severe plagiocephaly in 2004/2005.

They offer families on low incomes help with funding to allow them to proceed with treatment. Along with the trustees of the charity they are also able to assist families in fundraising activities, to benefit both the charity and to fund treatment for their own baby. They are also now able to Gift Aid donations made to them by UK tax payers. You can e-mail them by clicking this link Headstart4babies

If you wish to show your support for headstart4babies you can make a donation at their Just Giving web Page:

http://www.justgiving.com/h4b

http://www.plagiocephalycare.org.uk
Independent Scottish based parent support group for parents. The site offers a full discussion forum with information and help for parents.

http://health.groups.yahoo.com/group/Plagiocephaly/
Independently moderated US based parent support group providing message board, information and links to further information.

http://www.cappskids.org/
Craniosynostosis and Positional Plagiocephaly Support Inc. An American charitable status support group. Started by a mother whose child had Craniosynostosis to offer support and information to other families, now offers support to families that have a child or children with Positional Plagiocephaly.

http://health.groups.yahoo.com/group/OlderPlag
Independent support group for parents of children over 2 years of age who have Deformational Plagiocephaly but were not treated with a cranial orthosis.

http://www.craniosupport.com/
Web site that provides links to a variety of Plagiocephaly web based support groups. It lists Plagiocephaly support web sites mainly US and Canada but some sites from other countries including the UK.